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THE SCIENTIFIC ADVISORY BOARD MAINTAINS THE RESEARCH FOCUS ON TREATMENTS THAT CAN PROCEED FROM CLINIC  TO PATIENTS AS SOON AS POSSIBLE 

The PACS1 Syndrome Research Foundation is PURELY research focused, funding scientific research towards finding a cure for PACS1 Syndrome. We do not have an advocacy wing.

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Dr. Joseph Gleeson, M.D.

Howard Hughes Medical Investigator, Residency Harvard Medical School, Chair: Rady Children’s Institute for Genomic Medicine

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Dr. Arthur Horwich, M.D

Howard Hughes Medical Investigator, Sterling Professor of Genetics and Pediatrics, Yale School of Medicine, Lasker, CZI Breakthrough Prize 

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Dr. Sid Strickland, Ph.D.

Head, Patricia and John Rosenwald Laboratory of Neurobiology & Genetics, Rockefeller University, Dean Graduate Program, Rockefeller

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Dr. J.D. Vassalli, M.D., Ph.D.

Ph.D., Rockefeller University, M.D., University of Geneva, Professor Faculty of Medicine, President University of Geneva (2007 to 2015)

JOIN US, DONATE, AND MAKE A DIFFERENCE TODAY 
Over $1.7 million invested in cutting-edge scientific research to accelerate the search for a cure for PACS1 Syndrome. 

PACS1 Syndrome Research Foundation
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