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By sharing your child's story, you are supporting the PACS1 Syndrome Research Foundation's efforts to raise awareness and vital funds for disease-specific research.
PACS1 Syndrome is thought to affect approximately 250 children and young adults worldwide. Because PACS1 Syndrome is so rare, it's difficult for our families to connect with other PACS1 Syndrome families. It's our hope that through sharing our stories, we can help others feel less alone.
Tell Us About Your PACS1 Syndrome Warrior
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